When our son was born it was discovered that he had an imperforated
anus (no anus opening). He was transferred to Presbyterian/St. Luke's Medical Center (P/SL) for further evaluation
and to perform surgery to repair his imperforated anus.
On his 2nd day in this world he underwent surgery to put a
colostomy bag on and to explore what work was needed to repair his anus. During the surgery it was
discovered that not much was needed. Therefore, it was repaired at the same time.
After the surgery, the specialists at P/SL began their testing
to determine what other abnormalities our son had.
The following are the areas of anomalies for our son:
V There
are 3 places in his spine where the vertebrae
are
abnormal. He has a blocked vertebrae in his neck
and one in the
middle of his back. He has an extra
vertebrae in his lower back and an extra rib on his left
side.
He is also at risk to develop scoliosis and tethered
spinal cord.
A He
was born with an imperforated anus, they repaired
this
and he had a colostomy bag on for 3 weeks. The
doctors
felt that the bag was causing more
problems
then helping, so it was removed. He did not stool on his
own
for 7 months, so we
had to do daily irrigations for
him until
September 2004.
C He
had a tiny PDA and small ASD in his heart but both
cleared
up within the first few weeks. He also has a
minor leak in the mitral
valve of his heart. They are hoping
that this will clear up on its own.
T He
does not have any trachea issues.
E He
does not have any esophagus issues.
R He
has both kidneys but they are fused together (crossed
fused
kidneys) on his left side. The right is smaller than
the left one, but
they both work. In September 2004 my
son had a
successful surgery to repair a reflux from
the bladder
back into his kidneys.
L He
does not have any limb issues.
The following is a list of some of the surgeries and procedures
that Isaac has had:
2/3/04 - Surgery to perform the pull-through and to put
a colostomy bag on. They also repaired his imperforated anus.
2/23/04 - Take down, removal of colostomy bag.
3/30/04 - Surgery to repair 3 hernias.
9/21/04 - Surgery to repair his reflux of urine from bladder to kidneys.(Grade 4 VUR).
9/19/05 - Surgery to fuse vertebrae in his neck and be placed in a halo brace.
These are the major surgeries that our son has had. He has had several X-rays,
renal ultrasounds, MRI's, barium enemas with ultrasounds, and dilation while under anesthesia.
We know that there will more surgeries, procedures and tests
in Isaac's future but we will always hope and pray that our son will emerge stronger.
Written April 2005
